I am going to share about a few little moments that have warmed my heart recently.

I live in a two family house, any my grandparent live on the first floor. So we always always have family […]

Hi my name is Alex Boothby and I am a 23 year old living with Huntingtons Disesae.
I try to find joy in my struggle and live with passion. HD has positively affected my out look on life, and I strive to portray […]

Hi readers,

I had a really great weekend. I hope you did too! Mine was filled with babies and that always makes me happy!

On Friday I went to the beach with my two aunts, […]

I had so much fun in Marco Island, I could have stayed there for ever.

I shared about my excitement and how what the Loritz Family means to me here. 

The plan was to surprise the […]

 
All my cousins are more like my brothers and sisters, and all of their kids are my nieces and nephews. I love all of those nieces and nephews more than my words can say. In my family, family matters.  They are my every thing, my support system, my best friends. I do not know where I would be without my family, we are all extremely close.
 
Yesterday, I was at my cousins house visiting his new baby James. His wife Katie and him asked  me to be his godmother. I immediately started crying and then said of course. I feel so honored and beyond grateful that of all people he could have chose, and they chose me. It also shows that my family loves me despite my HD. It just makes my heart warm. 

Now this is very special to me because of my HD, I have chosen not to have children, a choice that breaks 
 heart. My Godson baby James heals my heart, and makes me happy. I am just so thankful to have him in my life.


It is a beautiful honor to be baby James god  mother, and it mends all of the broken pieces the HD has broken.

Thanks for reading ,
Alex

 Hi readers,

I hope you are all in love with your summer. I know that I am.


One thing that I have learned on my journey with HD, is that happiness is a choice. Each day I have to wake up, and tell myself […]