Special Needs Parenting

Menkes Disease

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    • #31947

      Nathaniel Hammel

      MY Son Artimus Dakota Hammel Died from Menkes on April 2nd 2008.

      Wiki – Definition

      Poem I Wrote/Read at funeral

      This disease is nothing to mess with. There are 3 levels of severity of this disease, my son had the worst. Mom’s are carriers, and boys get infected. The mother (Tara) had a genealogy done over 100 years on her moms side of the family and no other boy had been infected. So the Doctors placed him in a 10% range where the gene Mutated in the womb….

    • #32162

      Kyla Matton Osborne

      So sorry for your loss! Wow, I hadn’t realized that sometimes these sex-linked conditions can also involve a mutation in the womb…..

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