Oh, wow, Sadie! I’m so sorry to hear this. I didn’t know that. I couldn’t even imagine how tough. Bless your heart. I have a couple of friends who have this, too & it just baffles me the pain they go through. ;(
So sorry to hear SadieMarie. If you don’t mind can you explain more about this, I’ve heard about it briefly but could use a refresher..as I’m sure a lot of people can as well 🙂 Blog post???